Worldwide Map Registration

You need to fill the form below and put a pin close to your location on the map. You will also receive an email to validate your email address. Once the email address is validated your pin will start showing on the map.

The worldmap will provide guidence to researchers and volunteers to plan & coordinate better. It is inspired by previous work for rare genetic disorders like: SynGAP, ADNP, GRIN2B and DYRK1A

The data is used mainly for research and planning purposes. However if you allow so, other parents can get in contact with you (Not available yet).

A page for data updates will be available here soon.