Building a
brighter future.
IDefine is committed to identifying life-changing treatments & cures for those with Kleefstra syndrome (KS), a neurodevelopmental disorder caused by a loss of function in one copy of the gene EHMT1.
To learn more about IDefine’s current efforts, please read this update of our Foundation Highlights!
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The third annual Southern Roots: A BBQ Reunion in April was a resounding success raising close to $100,000 for IDefine – more than the first two years...
IDefine is a nonprofit organization that exists to provide a central community for families affected by Kleefstra Syndrome (KS)
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Our “ I Love Someone Rare” Campaign products are available for purchase now. All proceeds….
I Love Someone
Rare T-shirt
I Love Someone Rare
Water Bottle
I Love Someone
Rare Mug
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If you have any questions feel free to contact us. We will be sure to get back to you as soon as possible.