Building a
brighter future.

IDefine is committed to identifying life-changing treatments & cures for those with Kleefstra Syndrome.

To learn more about IDefine’s current efforts, please read this update of our Foundation Highlights!

Our Events

With your help, we can make a difference in the lives of families every where across the world with Kleefstra Syndrome. Your generosity helps support the Kleefstra Clinic, enables our ability to build community via our 2024 family conference, and drives research initiatives forward that we hope will provide a brighter future for our loved ones!

Our Blog

Volume 6 Draft Figure
CSO Corner Volume 6: ASOs Part 2
Hello fellow members of our KS family! For this newsletter, I’d like to return to antisense oligonucleotides, or “ASOs”. If you haven’t read my previous...

2024 North American Family Conference Survey

We're planning NOW!

We are thrilled to begin planning for our 2024 North American Kleefstra Syndrome Family Conference!  In 2022, families from across the United States and Canada gathered outside if Chicago for several days of community building, informative sessions, and support.  We can’t wait for next year!

Our Online Store

Support our cause

Our “ I Love Someone Rare” Campaign products are available for purchase now. All proceeds….

I Love Someone
Rare T-shirt

I Love Someone Rare
Water Bottle

I Love Someone
Rare Mug

We would love to hear from you.

If you have any questions feel free to contact us. We will be sure to get back to you as soon as possible.