Building a
brighter future.

IDefine is committed to identifying life-changing treatments & cures for those with Kleefstra syndrome (KS), a neurodevelopmental disorder caused by a loss of function in one copy of the gene EHMT1.

Our Blog

Southern Roots: A BBQ Reunion marks milestone fifth year with sold-out crowds and strong fundraising
The fifth annual Southern Roots: A BBQ Reunion reached new heights in 2026, blending world-class barbecue, community spirit and significant fundraising...

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Support our cause

Our “I Love Someone Rare” Campaign products are available for purchase now!

I Love Someone
Rare Hoodie

I Love Someone
Rare TShirt

I Love Someone
Rare Mug

We would love to hear from you.

If you have any questions feel free to contact us. We will be sure to get back to you as soon as possible.