Building a
brighter future.

IDefine is committed to identifying life-changing treatments & cures for those with Kleefstra syndrome (KS), a neurodevelopmental disorder caused by a loss of function in one copy of the gene EHMT1.

To learn more about IDefine’s current efforts, please read this update of our Foundation Highlights!

Our Blog

Prof. Nael Nadif-Kasri IDefine forms collaboration with Radboud University, biotech company
IDefine forms collaboration with Radboud University, biotech company
IDefine is co-sponsoring a project in the laboratory of Prof. Nael Nadif-Kasri at Radboud University to develop improved in vitro modelling of Kleefstra...

Our Online Store

Support our cause

Our “ I Love Someone Rare” Campaign products are available for purchase now. All proceeds….

I Love Someone
Rare T-shirt

I Love Someone Rare
Water Bottle

I Love Someone
Rare Mug

We would love to hear from you.

If you have any questions feel free to contact us. We will be sure to get back to you as soon as possible.