Building a
brighter future.
IDefine is committed to identifying life-changing treatments & cures for those with Kleefstra syndrome (KS), a neurodevelopmental disorder caused by a loss of function in one copy of the gene EHMT1.
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Turn Up the Volume: A Treatment Focused Campaign for Kleefstra Syndrome
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Community Powered Research: Defining A New Future 100%
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Southern Roots: A BBQ Reunion marks milestone fifth year with sold-out crowds and strong fundraising
The fifth annual Southern Roots: A BBQ Reunion reached new heights in 2026, blending world-class barbecue, community spirit and significant fundraising...
IDefine is a nonprofit organization that exists to provide a central community for families affected by Kleefstra Syndrome (KS)
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