Build a Brighter Future
for Kleefstra Syndrome

Since IDefine launched in 2020, we have been intent on raising funds to build a brighter future for our loved ones with Kleefstra syndrome.  For us to move our mission forward in building our community, further developing understand and coordinated medical care, and to accelerate our abilityto bring a treatment to our loved ones, we need you.  We must create the future we hope for.  Through fundraising, we can raise awareness, and drive progress on cutting edge research technologies.  We are here to help-take action today!

Progress KS Through Fundraising

Create Your Event

Build a Brighter Future

Whether it’s Karaoke for Kleefstra or Southern Roots Reunion, casual events that bring together family and friends to have help raise funds while having an exceptionally goo Our team works with you, the host, to find and book a location and set up an event page to sell tickets.  Ready to get started? Email Meredith

Kickstart for Kleefstra

Take a cue and grab your shoes like Brianna’s Brigade! Hosting a walk + run can be as simple as finding a location, inviting your friends, and walking! Our team will set up your walk’s fundraising page, help create materials to promote your event, and more!  Ask us to learn more about hosting an event!

Kleefstra Cup

Hit the course to drive engagement, networking, and fun!  The Camp Spearhead-IDefine Open is a great example of how players and sponsors rally around a mission.  Each tournament creates unique opportunties for raffles, auctions,  or unique in-game compeitions to boost donations and enjoyment. 

DIY Fundraising

From a bake sale to a Facebook fundraiser, there are almost endless opportunities for simple yet meaningful contributions.  We can help you launch a campaign to share your story.  Our work and our future relies on our community and their networks.  Help us define our future!

We invite you to join the fight! Reach out to participate in an existing event or to get our support in starting a new one. Together, we can make a difference!