Build a Brighter Future for Kleefstra Syndrome
Since IDefine launched in 2020, we've been driven to build a brighter future for our loved ones with Kleefstra syndrome. Fundraising fuels every part of our mission — from accelerating research to strengthening coordinated medical care. We need you. Together, we can create the future we're hoping for.
"Your fundraising and advocacy are not just helpful — they're essential. Many of the biggest breakthroughs in rare disease research have come because families refused to wait. With your support, we can ask bold questions, move faster, and build the foundation for change."— Dr. Angels Almenar-Queralt, IDefine Researcher
4 Ways to Fuel the Mission
Pick the path that fits you best — every one moves Kleefstra syndrome research forward.
Give Today
The fastest way to help. Your gift directly supports IDefine's research and clinical care programs.
Donate Now →Host a Fundraising Event
Turn a birthday, a walk, a golf outing, or a night out with friends into fuel for the mission.
Start Your Event →Give Crypto, Stock, or a DAF Grant
Tax-smart ways to give more — often at little to no extra cost to you.
Explore Ways to Give →Explore Fundraising Events
See what other families have hosted — and get inspired for your own.
See Events →Fundraising Events Fueling KS Research
Whether it's a walk, a golf outing, karaoke night, or a bake sale — every event brings our community together and raises funds for research. Here's how families and friends are getting involved:
Create Your Own Event
From casual gatherings like Karaoke for Kleefstra to full celebrations like the Southern Roots Reunion, our team works with you to book a location, build your campaign page, and get your event off the ground.
Kickstart for Kleefstra
Lace up like Brianna's Brigade! Hosting a walk or run can be as simple as picking a location, inviting your friends, and walking. We'll set up your fundraising page and help spread the word.
Kleefstra Cup
Hit the course for engagement, networking, and fun. The Camp Spearhead–IDefine Open shows how players and sponsors rally around a mission — with raffles, auctions, and friendly competition along the way.
DIY Fundraising
From a bake sale to a Facebook fundraiser, there are endless ways to make a meaningful contribution. We'll help you launch a campaign and share your story — our future relies on our community and their networks.
Give Every Day
Make a one-time or monthly gift to fuel research and clinical care for Kleefstra syndrome.
Donate NowGive Crypto, Stock, or a DAF Grant
Explore tax-smart ways to give more — often at little to no extra cost to you.
See Ways to Give