2022 International Conference

International Kleefstra Syndrome Family + Scientific Conference, March 24, 2022 (Virtual)

Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org

2022 North American Family Conference

North American Kleefstra Syndrome Family Conference (In Person) June 23-25, 2022 - Naperville, IL

This conference will focus on practical education and tips for families raising children and adults with KS.

2021 Conference

International Kleefstra Syndrome Family + Scientific Conference

Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org

2022 Conference

International Kleefstra Syndrome Family + Scientific Conference

Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org

The event is free and open to all families, advocates and organizers interested.

Our Blog

Tanja and Adja
IDefine Europe helps connect Kleefstra Syndrome communities
It is estimated that there are about 260,000 Kleefstra Syndrome patients worldwide, only 11,000 of which are in the United States. It’s a statistic underscoring...

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Organize a Meet Up

Are you interested in organizing a meetup for families in your area? Reach us at community@idefine.org .

Launch a Fundraiser

interested in hosting a fundraiser to further our mission? Reach out to us at unlock@idefine.org .

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We would love to hear from you.

If you have any questions feel free to contact us. We will be sure to get back to you as soon as possible.