2022 International Conference

International Kleefstra Syndrome Family + Scientific Conference, March 24, 2022 (Virtual)

Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org

2022 North American Family Conference

North American Kleefstra Syndrome Family Conference (In Person) June 23-25, 2022 - Naperville, IL

This conference will focus on practical education and tips for families raising children and adults with KS.

2021 Conference

International Kleefstra Syndrome Family + Scientific Conference

Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org

2022 Conference

International Kleefstra Syndrome Family + Scientific Conference

Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org

The event is free and open to all families, advocates and organizers interested.

Our Blog

Copy of Thank You
IDefine celebrates two-year anniversary, accomplishments
On September 17, 2020, during the COVID pandemic, IDefine was launched. In the last two years, incredible progress has been made. On this KS Awareness...

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Organize a Meet Up

Are you interested in organizing a meetup for families in your area? Reach us at community@idefine.org .

Launch a Fundraiser

interested in hosting a fundraiser to further our mission? Reach out to us at unlock@idefine.org .

Newsletter Archive

Are you looking for newsletter archive? You can access previous newsletters by clicking here.

We would love to hear from you.

If you have any questions feel free to contact us. We will be sure to get back to you as soon as possible.