2022 Conference

Details coming later this year for the 2022 conference!

2021 Conference

International Kleefstra Syndrome Family + Scientific Conference

Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org

The event is free and open to all families, advocates and organizers interested.

2021 Conference

International Kleefstra Syndrome Family + Scientific Conference

Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org

The event is free and open to all families, advocates and organizers interested.

Our Blog

Julie and Amber Drake (1)
Kleefstra mom, Julie Drake, joins IDefine as Director of Partnerships
Although IDefine was just founded in 2020, it has expanded its network globally, hosted conferences, connected with researchers and biotech firms, raised...

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Organize a Meet Up

Are you interested in organizing a meetup for families in your area? Reach us at community@idefine.org .

Launch a Fundraiser

interested in hosting a fundraiser to further our mission? Reach out to us at unlock@idefine.org .

We would love to hear from you.

If you have any questions feel free to contact us. We will be sure to get back to you as soon as possible.