News + Events - IDefine

IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.

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Quick Clips: Kleefstra Syndrome in the News

Nola.com: Mother's calling to help others was heard at her child's bedside

Indianapolis Star: Tools break down barriers for young artists with disabilities at Fishers Elementary

Boston Children's Hospital: Cracking the code on Kleefstra syndrome: It takes a community

International Kleefstra Syndrome Family + Scientific Conferences

2022 Virtual Conference

Hosted by IDefine, Kleefstra Syndrome Europe Alliance, The Translational Neuroscience Center at Boston Children’s Hospital, and Radboud University Medical Centre.

2021 Virtual Conference

International Kleefstra Syndrome Family + Scientific Conference

Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org

2022 Conference

International Kleefstra Syndrome Family + Scientific Conference

Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org

The event is free and open to all families, advocates and organizers interested.

Our Blog

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IDefine joins Rare Epilepsy Network

Epilepsy is a brain disorder that causes recurring, unprovoked seizures. Doctors may diagnose individuals with epilepsy if they have two unprovoked seizures...

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Organize a Meet Up

Are you interested in organizing a meetup for families in your area? Reach us at community@idefine.org .

Launch a Fundraiser

interested in hosting a fundraiser to further our mission? Reach out to us at unlock@idefine.org .

Newsletter Archive

Are you looking for newsletter archive? You can access previous newsletters by clicking here.

We would love to hear from you.

If you have any questions feel free to contact us. We will be sure to get back to you as soon as possible.

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