Quick Clips: Kleefstra Syndrome in the News
Nola.com: Mother's calling to help others was heard at her child's bedside
Indianapolis Star: Tools break down barriers for young artists with disabilities at Fishers Elementary
Boston Children's Hospital: Cracking the code on Kleefstra syndrome: It takes a community
International Kleefstra Syndrome Family + Scientific Conferences
2022 Virtual Conference
Hosted by IDefine, Kleefstra Syndrome Europe Alliance, The Translational Neuroscience Center at Boston Children’s Hospital, and Radboud University Medical Centre.
2021 Virtual Conference
International Kleefstra Syndrome Family + Scientific Conference
Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org
2022 Conference
International Kleefstra Syndrome Family + Scientific Conference
Hosted by IDefine, Boston Children’s Hospital Translational Neuroscience Center, Radboud University Medical Center, and KleefstraSyndrome.org
The event is free and open to all families, advocates and organizers interested.
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Organize a Meet Up
Are you interested in organizing a meetup for families in your area? Reach us at community@idefine.org .
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interested in hosting a fundraiser to further our mission? Reach out to us at unlock@idefine.org .
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