IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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About IDefine
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About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worlwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
Radboud
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BCH Visit Preparation
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2021 Conference
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Newsletter Archive
Store
About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worlwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
Radboud
Resources
Get Involved
BCH Visit Preparation
Research
Our Mission
Scientific Advisory Board
CZI Meta Feed
Natural History Study
Survey
Our Projects
News + Events
2022 Conference
2021 Conference
Blog
Organize a Meet Up
Launch a Fundraiser
Newsletter Archive
Store
Donate
Now
Newsletter Archive
Have you missed an edition of the IDEFINE newsletter? You can read newsletters that have already been sent out here.
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Internationally-known speech therapist may target KS
Nov 20, 2021
Newsletter November 2021
Nov 20, 2021
Passionate, experienced KS grandparent assumes leadership of Kleefstrasyndrome.org
Sep 16, 2021
Data and parents will be the key to a cure, says KS mom, researcher
Jul 16, 2021
Island Community Rolls Up BIG Support for KS
Dec 21, 2021
Rise Above
Oct 21, 2021
Maryland mom shares story of struggles as daughter ages
Aug 13, 2021
Meet Paul Smith — KS Dad and Scientific Advisor to IDefine
Jun 18, 2021