Newsletter Archive

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Meet the Gene Fixers, Recognize Rare Disease Day with a Zebra print, and a Save the Date!

Feb 18, 2022

Morgan photo

Internationally-known speech therapist may target KS

Jan 19, 2022

Julie and Amber Drake (1)

Newsletter November 2021

Nov 20, 2021

Wendy

Passionate, experienced KS grandparent assumes leadership of Kleefstrasyndrome.org

Sep 16, 2021

Data and parents will be the key to a cure, says KS mom, researcher

Jul 16, 2021

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Scientific Conference this week

Mar 22, 2022

Wynne Tour de Tavern

Island Community Rolls Up BIG Support for KS

Dec 21, 2021

Rise Above

Oct 21, 2021

Maryland mom shares story of struggles as daughter ages

Aug 13, 2021

Meet Paul Smith — KS Dad and Scientific Advisor to IDefine

Jun 18, 2021