IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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About IDefine
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About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
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Newly Diagnosed?
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About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worldwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
BCH Visit Preparation
Radboud
Resources
Research
Our Mission
Research Funding
Funding Opportunities
Get Involved
For Researchers
Scientific Advisory Board
Natural History Study
News + Events
Blog
Newsletter Archive
2022 Conference
2021 Conference
Organize a Meet Up
Launch a Fundraiser
Store
Donate
Now
IDefine Blog
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CSO Corner
IDefine News
Uncategorized
Margo Knight Metzger joins IDefine board
IDefine News
- July 28, 2024
Information, inspiration gained from Family Conference
IDefine News
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Big Fundraiser for IDefine
IDefine News
- June 1, 2024
Excitement builds for Family Conference!
IDefine News
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CSO Corner Volume 9: Making More Sophisticated Models
CSO Corner
- February 17, 2024
Early bird registration open for Family Conference, agenda available
IDefine News
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2024 Kleefstra Syndrome North American Family Conference Update
IDefine News
- January 14, 2024
CSO Corner Volume 8: The Importance of Models
CSO Corner
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IDefine News
- January 13, 2024
CSO Corner Volume 7: On Finding Out (and a Call to Action!)
CSO Corner
- December 19, 2023
A Night at the Races is a winner for IDefine
IDefine News
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