IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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  • About IDefine
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    • What is Kleefstra Syndrome
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  • Store
  • About IDefine
    • Our Story
    • Our Mission
    • Our Team
  • Caregiver Community
    • What is Kleefstra Syndrome
    • The Kleefstra Clinic
    • Kleefstra Syndrome Care Guidelines
    • Newly Diagnosed
    • Family by Fate
    • Worldwide Map
    • Resources
  • Research
    • Our Purpose
    • Clinical Advisory Board (CAB)
    • Scientific Advisory Board (SAB)
    • Research Funding
    • Funding Opportunities
    • For Researchers
  • Fundraise for Research
    • Donate Now
    • Ways to Give: Crypto, Stock & DAF
    • Fundraising Events
    • Host an Event
  • News + Events
    • Announcements
    • Conferences
    • 2026 North American Kleefstra Syndrome Conference
    • IDefine Blog
    • Scientific Summit 2026
  • Store
IDefine
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IDefine Blog
Categories
ALL
ALL CSO CornerIDefine NewsUncategorized

Southern Roots Reunion Recap

Uncategorized  - April 23, 2023

Prof. Kleefstra recruited to new hospital

Uncategorized  - April 22, 2023

IDefine Europe helps connect Kleefstra Syndrome communities

IDefine News  - March 20, 2023

A day to highlight humanness, acknowledge progress

IDefine News  - February 22, 2023

KS census number a top priority in 2023

IDefine News  - January 18, 2023

Florida students recognize KS awareness

IDefine News  - December 12, 2022

Restaurant group serves helping of generosity, raising money for IDefine

IDefine News  -

Brianna’s Brigade marches on

IDefine News  - November 16, 2022

IDefine invests in developing stem cell line models

IDefine News  - October 14, 2022

Conference provides insights for rare disease organizations

IDefine News  -
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IDefine – The Kleefstra Syndrome Foundation

We are glad you found us.

Together, we are turning barriers into bridges and building a brighter future for everyone affected by Kleefstra syndrome.

Talk to a parent, questions, volunteeringunlock@idefine.org
Kleefstra Syndrome ClinicKleefstraSyndromeClinic@childrens.harvard.edu
617-355-3645
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Diagnosis codeICD-10-CM Q87.86

© 2026 IDefine – The Kleefstra Syndrome Foundation, a 501(c)(3) nonprofit founded by parents in 2020. All rights reserved.

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