IDefine News Archives - IDefine

IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.

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Chinese Kleefstra syndrome community expresses interest in partnering on future research

IDefine News - June 26, 2026

Southern Roots: A BBQ Reunion marks milestone fifth year with sold-out crowds and strong fundraising

IDefine News - May 11, 2026

Pickleball with a Purpose: How We Smashed Our $25k Goal

IDefine News - March 29, 2026

CSO Corner, Volume 14: Turning up the Volume on EHMT1

CSO Corner | IDefine News -

“By the Book” care arrives: International clinical guideline published for Kleefstra syndrome

IDefine News - January 25, 2026

Family by Fate: The McDonald family turning barriers into bridges

IDefine News - December 2, 2025

From Clinic Visit to Crucial Research: Our Experience at the Kleefstra Clinic and Natural History Study

IDefine News - October 19, 2025

Raelynn’s Run unites community, raises $30,000 for Kleefstra syndrome research

IDefine News - October 18, 2025

Family by Fate: The Finlaysons’ Journey with Kleefstra Syndrome

IDefine News - August 23, 2025

Family by Fate: The Landstroms’ Kleefstra Syndrome Journey

IDefine News - July 20, 2025

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