IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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    • Our Mission
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  • Caregiver Community
    • Newly Diagnosed
    • What is Kleefstra Syndrome
    • Family by Fate
    • Worldwide Map
    • The Kleefstra Clinic
    • Resources
  • Research
    • Our Purpose
    • Clinical Advisory Board (CAB)
    • Scientific Advisory Board (SAB)
    • Research Funding
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    • For Researchers
  • Fundraise for Research
  • News + Events
    • Conferences
    • IDefine Blog
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ALL CSO CornerIDefine NewsUncategorized

New Natural History Study for Kleefstra Syndrome: A Q&A for Families

CSO Corner | IDefine News  - April 11, 2025

The Impact of NIH Indirect Cost Rate Reductions on Rare Disease Research

IDefine News  - March 22, 2025

A Historic Step Forward: IDefine Approves $300,000 for Natural History Study with Boston Children’s Hospital

IDefine News  -

IDefine forms collaboration with Radboud University, biotech company

IDefine News  - February 21, 2025

IDefine awards project to develop advanced cell models of Kleefstra syndrome

IDefine News  -

Rare U: Education and Awareness for our Kleefstra Community

IDefine News  - February 15, 2025

Family by Fate: Meet the Ng-Gerritsens

IDefine News  - February 9, 2025

New Study on Kleefstra Syndrome Offers Hope for Better Care and Future Treatments

Uncategorized  - January 18, 2025

IDefine joins Rare Epilepsy Network

IDefine News  - November 23, 2024

CSO Corner Volume 11: Searching for Biomarkers

CSO Corner | IDefine News  -
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IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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