The Parmann Family Becomes the 100th to visit BCH Kleefstra Clinic

IDefine News  - April 27, 2025

New Natural History Study for Kleefstra Syndrome: A Q&A for Families

CSO Corner | IDefine News  - April 11, 2025

A Historic Step Forward: IDefine Approves $300,000 for Natural History Study with Boston Children’s Hospital

IDefine News  - March 22, 2025

New Study on Kleefstra Syndrome Offers Hope for Better Care and Future Treatments

Uncategorized  - January 18, 2025

IDefine joins Rare Epilepsy Network

IDefine News  - November 23, 2024

Information, inspiration gained from Family Conference

IDefine News  - July 28, 2024

Excitement builds for Family Conference!

IDefine News  - June 1, 2024

2024 Kleefstra Syndrome North American Family Conference Update

IDefine News  - January 14, 2024

A Night at the Races is a winner for IDefine

IDefine News  - December 19, 2023

Meet Disease Concept Model Leader Kristen Connors

IDefine News  - July 16, 2023