From Clinic Visit to Crucial Research: Our Experience at the Kleefstra Clinic and Natural History Study

IDefine News  - October 19, 2025

Family by Fate: The Finlaysons’ Journey with Kleefstra Syndrome

IDefine News  - August 23, 2025

Family by Fate: The Landstroms’ Kleefstra Syndrome Journey

IDefine News  - July 20, 2025

Understanding Autism Spectrum Disorder (ASD) in Kleefstra Syndrome: A Guide for Families

IDefine News  - May 18, 2025

The Parmann Family Becomes the 100th to visit BCH Kleefstra Clinic

IDefine News  - April 27, 2025

New Natural History Study for Kleefstra Syndrome: A Q&A for Families

CSO Corner | IDefine News  - April 11, 2025

A Historic Step Forward: IDefine Approves $300,000 for Natural History Study with Boston Children’s Hospital

IDefine News  - March 22, 2025

New Study on Kleefstra Syndrome Offers Hope for Better Care and Future Treatments

Uncategorized  - January 18, 2025

IDefine joins Rare Epilepsy Network

IDefine News  - November 23, 2024

Information, inspiration gained from Family Conference

IDefine News  - July 28, 2024