IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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About IDefine
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About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
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About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worldwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
BCH Visit Preparation
Radboud
Resources
Research
Our Mission
Research Funding
Funding Opportunities
Get Involved
For Researchers
Scientific Advisory Board
Natural History Study
News + Events
Blog
Newsletter Archive
2022 Conference
2021 Conference
Organize a Meet Up
Launch a Fundraiser
Store
Donate
Now
IDefine Blog
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CSO Corner
IDefine News
Uncategorized
IDefine joins Rare Epilepsy Network
IDefine News
- November 23, 2024
Information, inspiration gained from Family Conference
IDefine News
- July 28, 2024
Excitement builds for Family Conference!
IDefine News
- June 1, 2024
2024 Kleefstra Syndrome North American Family Conference Update
IDefine News
- January 14, 2024
A Night at the Races is a winner for IDefine
IDefine News
- December 19, 2023
Meet Disease Concept Model Leader Kristen Connors
IDefine News
- July 16, 2023
CSO Corner Volume 4: Creating a Disease Concept Model
CSO Corner
- June 16, 2023