IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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  • About Kleefstra Syndrome
    • What is Kleefstra Syndrome
    • Newly Diagnosed?
    • Testing and Diagnosis
    • Therapies and Early Interventions
    • Worldwide Map
  • Caregiver Community
    • Newly Diagnosed?
    • Boston Childrens Hospital
    • BCH Visit Preparation
    • Radboud
    • Resources
  • Research
    • Our Mission
    • Research Funding
    • Funding Opportunities
    • Get Involved
    • For Researchers
    • Scientific Advisory Board
    • Natural History Study
  • News + Events
    • Fundraise for Research
    • Awareness Day
    • Blog
      • Newsletter Archive
    • 2022 Conference
    • 2021 Conference
    • Organize a Meet Up
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IDefine Blog
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ALL CSO CornerIDefine NewsUncategorized

IDefine forms collaboration with Radboud University, biotech company

IDefine News  - February 21, 2025

CSO Corner Volume 8: The Importance of Models

CSO Corner | IDefine News  - January 13, 2024

IDefine’s Margo Metzger Joins EveryLife Foundation for Rare Diseases

IDefine News  - August 20, 2023

IDefine Europe helps connect Kleefstra Syndrome communities

IDefine News  - March 20, 2023

Conference provides insights for rare disease organizations

IDefine News  - October 14, 2022

Coming up big for Kleefstra Syndrome Down Under

IDefine News  - August 15, 2022

IDefine attends Ultragenyx Rare Entrepreneur Bootcamp

IDefine News  - May 16, 2022

It Takes a Village Returns

IDefine News  - April 15, 2022

GI symptoms in KS and other disorders to get candid analysis

IDefine News  -

In effort to fast track therapies, IDefine joins COMBINEDBrain

IDefine News  - March 22, 2022
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IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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