“By the Book” care arrives: International clinical guideline published for Kleefstra syndrome

IDefine News  - January 25, 2026

IDefine forms collaboration with Radboud University, biotech company

IDefine News  - February 21, 2025

CSO Corner Volume 8: The Importance of Models

CSO Corner | IDefine News  - January 13, 2024

IDefine’s Margo Metzger Joins EveryLife Foundation for Rare Diseases

IDefine News  - August 20, 2023

IDefine Europe helps connect Kleefstra Syndrome communities

IDefine News  - March 20, 2023

Conference provides insights for rare disease organizations

IDefine News  - October 14, 2022

Coming up big for Kleefstra Syndrome Down Under

IDefine News  - August 15, 2022

IDefine attends Ultragenyx Rare Entrepreneur Bootcamp

IDefine News  - May 16, 2022

It Takes a Village Returns

IDefine News  - April 15, 2022

GI symptoms in KS and other disorders to get candid analysis

IDefine News  -