#community Archives - IDefine

IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.

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From Clinic Visit to Crucial Research: Our Experience at the Kleefstra Clinic and Natural History Study

IDefine News - October 19, 2025

Raelynn’s Run unites community, raises $30,000 for Kleefstra syndrome research

IDefine News - October 18, 2025

Family by Fate: The Finlaysons’ Journey with Kleefstra Syndrome

IDefine News - August 23, 2025

Family by Fate: The Landstroms’ Kleefstra Syndrome Journey

IDefine News - July 20, 2025

Understanding Autism Spectrum Disorder (ASD) in Kleefstra Syndrome: A Guide for Families

IDefine News - May 18, 2025

Hezekiah’s Journey: A Story of Love, Advocacy, and Strength

IDefine News - April 27, 2025

Southern Roots: A BBQ Reunion sells out, raises record funds

The Impact of NIH Indirect Cost Rate Reductions on Rare Disease Research

IDefine News - March 22, 2025

Rare U: Education and Awareness for our Kleefstra Community

IDefine News - February 15, 2025

Family by Fate: Meet the Ng-Gerritsens

IDefine News - February 9, 2025

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