Hezekiah’s Journey: A Story of Love, Advocacy, and Strength

IDefine News  - April 27, 2025

Southern Roots: A BBQ Reunion sells out, raises record funds

IDefine News  -

The Impact of NIH Indirect Cost Rate Reductions on Rare Disease Research

IDefine News  - March 22, 2025

Rare U: Education and Awareness for our Kleefstra Community

IDefine News  - February 15, 2025

Family by Fate: Meet the Ng-Gerritsens

IDefine News  - February 9, 2025

New Study on Kleefstra Syndrome Offers Hope for Better Care and Future Treatments

Uncategorized  - January 18, 2025

Information, inspiration gained from Family Conference

IDefine News  - July 28, 2024

Excitement builds for Family Conference!

IDefine News  - June 1, 2024

Early bird registration open for Family Conference, agenda available

IDefine News  - February 17, 2024

2024 Kleefstra Syndrome North American Family Conference Update

IDefine News  - January 14, 2024