IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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    • Our Mission
    • Our Team
    • Our Partners
  • About Kleefstra Syndrome
    • What is Kleefstra Syndrome
    • Newly Diagnosed?
    • Testing and Diagnosis
    • Therapies and Early Interventions
    • Worldwide Map
  • Caregiver Community
    • Newly Diagnosed?
    • Boston Childrens Hospital
    • BCH Visit Preparation
    • Radboud
    • Resources
  • Research
    • Our Mission
    • Research Funding
    • Funding Opportunities
    • Get Involved
    • For Researchers
    • Scientific Advisory Board
    • Natural History Study
  • News + Events
    • Blog
      • Newsletter Archive
    • 2022 Conference
    • 2021 Conference
    • Organize a Meet Up
    • Launch a Fundraiser
  • Store
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IDefine Blog
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ALL CSO CornerIDefine NewsUncategorized

New Study on Kleefstra Syndrome Offers Hope for Better Care and Future Treatments

Uncategorized  - January 18, 2025

IDefine joins Rare Epilepsy Network

IDefine News  - November 23, 2024

CSO Corner Volume 11: Searching for Biomarkers

CSO Corner | IDefine News  -

CSO Corner Volume 10: Establishing the Natural History of Kleefstra Syndrome

CSO Corner  - October 27, 2024

Margo Knight Metzger joins IDefine board

IDefine News  - July 28, 2024

Information, inspiration gained from Family Conference

IDefine News  -

Excitement builds for Family Conference!

IDefine News  - June 1, 2024

CSO Corner Volume 9: Making More Sophisticated Models

CSO Corner  - February 17, 2024

Early bird registration open for Family Conference, agenda available

IDefine News  -

2024 Kleefstra Syndrome North American Family Conference Update

IDefine News  - January 14, 2024
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IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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