IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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About IDefine
Our Story
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Our Team
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About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worlwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
Radboud
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BCH Visit Preparation
Research
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Natural History Study
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2022 Conference
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Newsletter Archive
Store
About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worlwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
Radboud
Resources
Get Involved
BCH Visit Preparation
Research
Our Mission
Scientific Advisory Board
Natural History Study
Survey
Our Projects
News + Events
2022 Conference
2021 Conference
Blog
Organize a Meet Up
Launch a Fundraiser
Newsletter Archive
Store
Donate
Now
IDefine Blog
Categories
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ALL
CSO Corner
IDefine News
Uncategorized
IDefine’s Margo Metzger Joins EveryLife Foundation for Rare Diseases
IDefine News
- August 20, 2023
Meet IDefine’s new director of development
IDefine News
- May 19, 2023
Southern Roots Reunion Recap
Uncategorized
- April 23, 2023
IDefine Europe helps connect Kleefstra Syndrome communities
IDefine News
- March 20, 2023
CSO Corner Volume 2: ICD-10 Codes
CSO Corner
- February 25, 2023
A day to highlight humanness, acknowledge progress
IDefine News
- February 22, 2023
IDefine Impact Report 2022
IDefine News
- January 21, 2023
Conference provides insights for rare disease organizations
IDefine News
- October 14, 2022
Coming up big for Kleefstra Syndrome Down Under
IDefine News
- August 15, 2022
Connections, information gained from Family Conference
IDefine News
- July 16, 2022
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