Chinese Kleefstra syndrome community expresses interest in partnering on future research

IDefine News  - June 26, 2026

Southern Roots: A BBQ Reunion marks milestone fifth year with sold-out crowds and strong fundraising

IDefine News  - May 11, 2026

Pickleball with a Purpose: How We Smashed Our $25k Goal

IDefine News  - March 29, 2026

Family by Fate: The McDonald family turning barriers into bridges

IDefine News  - December 2, 2025

From Clinic Visit to Crucial Research: Our Experience at the Kleefstra Clinic and Natural History Study

IDefine News  - October 19, 2025

Raelynn’s Run unites community, raises $30,000 for Kleefstra syndrome research

IDefine News  - October 18, 2025

Family by Fate: The Finlaysons’ Journey with Kleefstra Syndrome

IDefine News  - August 23, 2025

Family by Fate: The Landstroms’ Kleefstra Syndrome Journey

IDefine News  - July 20, 2025

Understanding Autism Spectrum Disorder (ASD) in Kleefstra Syndrome: A Guide for Families

IDefine News  - May 18, 2025

Hezekiah’s Journey: A Story of Love, Advocacy, and Strength

IDefine News  - April 27, 2025