IDefine’s Margo Metzger Joins EveryLife Foundation for Rare Diseases

IDefine News  - August 20, 2023

Meet IDefine’s new director of development

IDefine News  - May 19, 2023

Southern Roots Reunion Recap

Uncategorized  - April 23, 2023

IDefine Europe helps connect Kleefstra Syndrome communities

IDefine News  - March 20, 2023

CSO Corner Volume 2: ICD-10 Codes

CSO Corner  - February 25, 2023

A day to highlight humanness, acknowledge progress

IDefine News  - February 22, 2023

IDefine Impact Report 2022

IDefine News  - January 21, 2023

Conference provides insights for rare disease organizations

IDefine News  - October 14, 2022

Coming up big for Kleefstra Syndrome Down Under

IDefine News  - August 15, 2022

Connections, information gained from Family Conference

IDefine News  - July 16, 2022