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IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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    • What is Kleefstra Syndrome
    • Newly Diagnosed?
    • Testing and Diagnosis
    • Therapies and Early Interventions
    • Worldwide Map
  • Caregiver Community
    • Newly Diagnosed?
    • Boston Childrens Hospital
    • BCH Visit Preparation
    • Radboud
    • Resources
  • Research
    • Our Mission
    • Research Funding
    • Funding Opportunities
    • Get Involved
    • For Researchers
    • Scientific Advisory Board
    • Natural History Study
  • News + Events
    • Blog
      • Newsletter Archive
    • 2022 Conference
    • 2021 Conference
    • Organize a Meet Up
    • Launch a Fundraiser
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ALL CSO CornerIDefine NewsUncategorized

CSO Corner Volume 8: The Importance of Models

CSO Corner | IDefine News  - January 13, 2024

CSO Corner Volume 7: On Finding Out (and a Call to Action!)

CSO Corner  - December 19, 2023

A Night at the Races is a winner for IDefine

IDefine News  -

Regression in Kleefstra Syndrome

IDefine News  - November 19, 2023

The High Cost of Delayed Diagnosis in Rare Diseases: A Call to Action

IDefine News  - October 29, 2023

CSO Corner Volume 6: ASOs Part 2

CSO Corner | IDefine News  - September 13, 2023

IDefine’s Margo Metzger Joins EveryLife Foundation for Rare Diseases

IDefine News  - August 20, 2023

Sleep study results expected at end of summer

IDefine News  - July 16, 2023

Meet Disease Concept Model Leader Kristen Connors

IDefine News  -

KS Speech Study Results Being Analyzed

IDefine News  - June 16, 2023
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IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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