Raelynn’s Run unites community, raises $30,000 for Kleefstra syndrome research

IDefine News  - October 18, 2025

Family by Fate: The Finlaysons’ Journey with Kleefstra Syndrome

IDefine News  - August 23, 2025

Family by Fate: The Landstroms’ Kleefstra Syndrome Journey

IDefine News  - July 20, 2025

Tennessee Mom’s Five-Year Fight Leads to Historic Kleefstra Syndrome Coverage

IDefine News  - June 17, 2025

Building hope through science: Dr. Angels Almenar-Queralt and the power of neural organoids

IDefine News  - May 18, 2025

Hezekiah’s Journey: A Story of Love, Advocacy, and Strength

IDefine News  - April 27, 2025

The Parmann Family Becomes the 100th to visit BCH Kleefstra Clinic

IDefine News  -

Southern Roots: A BBQ Reunion sells out, raises record funds

IDefine News  -

The Impact of NIH Indirect Cost Rate Reductions on Rare Disease Research

IDefine News  - March 22, 2025

A Historic Step Forward: IDefine Approves $300,000 for Natural History Study with Boston Children’s Hospital

IDefine News  -