IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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About IDefine
Our Story
Our Mission
Our Team
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About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worldwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
BCH Visit Preparation
Radboud
Resources
Research
Our Mission
Funding Opportunities
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For Researchers
Scientific Advisory Board
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Blog
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About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worldwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
BCH Visit Preparation
Radboud
Resources
Research
Our Mission
Funding Opportunities
Get Involved
For Researchers
Scientific Advisory Board
Natural History Study
News + Events
Blog
Newsletter Archive
2022 Conference
2021 Conference
Organize a Meet Up
Launch a Fundraiser
Store
Donate
Now
IDefine Blog
Categories
ALL
ALL
CSO Corner
IDefine News
Uncategorized
Opportunity to establish KS biorepository
IDefine News
- May 19, 2023
CSO Corner Volume 3: Biorepositories
CSO Corner
-
Prof. Kleefstra recruited to new hospital
Uncategorized
- April 22, 2023
IDefine Europe helps connect Kleefstra Syndrome communities
IDefine News
- March 20, 2023
CSO Corner Volume 2: ICD-10 Codes
CSO Corner
- February 25, 2023
A day to highlight humanness, acknowledge progress
IDefine News
- February 22, 2023
IDefine Impact Report 2022
IDefine News
- January 21, 2023
IDefine invests in developing stem cell line models
IDefine News
- October 14, 2022
Conference provides insights for rare disease organizations
IDefine News
-
Coming up big for Kleefstra Syndrome Down Under
IDefine News
- August 15, 2022
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