IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
Donate Now Double the Donation
  • About IDefine
    • Our Story
    • Our Mission
    • Our Team
    • Our Partners
  • About Kleefstra Syndrome
    • What is Kleefstra Syndrome
    • Newly Diagnosed?
    • Testing and Diagnosis
    • Therapies and Early Interventions
    • Worlwide Map
  • Caregiver Community
    • Newly Diagnosed?
    • Boston Childrens Hospital
    • Radboud
    • Resources
    • Get Involved
    • BCH Visit Preparation
  • Research
    • Our Mission
    • Scientific Advisory Board
    • Natural History Study
    • Survey
    • Our Projects
  • News + Events
    • 2022 Conference
    • 2021 Conference
    • Blog
    • Organize a Meet Up
    • Launch a Fundraiser
    • Newsletter Archive
  • Store
  • About IDefine
    • Our Story
    • Our Mission
    • Our Team
    • Our Partners
  • About Kleefstra Syndrome
    • What is Kleefstra Syndrome
    • Newly Diagnosed?
    • Testing and Diagnosis
    • Therapies and Early Interventions
    • Worlwide Map
  • Caregiver Community
    • Newly Diagnosed?
    • Boston Childrens Hospital
    • Radboud
    • Resources
    • Get Involved
    • BCH Visit Preparation
  • Research
    • Our Mission
    • Scientific Advisory Board
    • Natural History Study
    • Survey
    • Our Projects
  • News + Events
    • 2022 Conference
    • 2021 Conference
    • Blog
    • Organize a Meet Up
    • Launch a Fundraiser
    • Newsletter Archive
  • Store
IDefine
Donate Now
IDefine Blog
Categories
ALL
ALL CSO CornerIDefine NewsUncategorized

IDefine’s Margo Metzger Joins EveryLife Foundation for Rare Diseases

IDefine News  - August 20, 2023

Sleep study results expected at end of summer

IDefine News  - July 16, 2023

Meet Disease Concept Model Leader Kristen Connors

IDefine News  -

KS Speech Study Results Being Analyzed

IDefine News  - June 16, 2023

CSO Corner Volume 4: Creating a Disease Concept Model

CSO Corner  -

Opportunity to establish KS biorepository

IDefine News  - May 19, 2023

CSO Corner Volume 3: Biorepositories

CSO Corner  -

Prof. Kleefstra recruited to new hospital

Uncategorized  - April 22, 2023

IDefine Europe helps connect Kleefstra Syndrome communities

IDefine News  - March 20, 2023

CSO Corner Volume 2: ICD-10 Codes

CSO Corner  - February 25, 2023
← older
IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
Privacy Policy
Connect with us.
Facebook Icon Instagram Icon Twitter Icon LinkedIn Icon YouTube Icon
© 2023 IDefine. All rights reserved.