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IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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  • About Kleefstra Syndrome
    • What is Kleefstra Syndrome
    • Newly Diagnosed?
    • Testing and Diagnosis
    • Therapies and Early Interventions
    • Worldwide Map
  • Caregiver Community
    • Newly Diagnosed?
    • Boston Childrens Hospital
    • BCH Visit Preparation
    • Radboud
    • Resources
  • Research
    • Our Mission
    • Research Funding
    • Funding Opportunities
    • Get Involved
    • For Researchers
    • Scientific Advisory Board
    • Natural History Study
  • News + Events
    • Fundraise for Research
    • Awareness Day
    • Blog
      • Newsletter Archive
    • 2022 Conference
    • 2021 Conference
    • Organize a Meet Up
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ALL CSO CornerIDefine NewsUncategorized

Tennessee Mom’s Five-Year Fight Leads to Historic Kleefstra Syndrome Coverage

IDefine News  - June 17, 2025

Building hope through science: Dr. Angels Almenar-Queralt and the power of neural organoids

IDefine News  - May 18, 2025

Hezekiah’s Journey: A Story of Love, Advocacy, and Strength

IDefine News  - April 27, 2025

The Parmann Family Becomes the 100th to visit BCH Kleefstra Clinic

IDefine News  -

Southern Roots: A BBQ Reunion sells out, raises record funds

IDefine News  -

The Impact of NIH Indirect Cost Rate Reductions on Rare Disease Research

IDefine News  - March 22, 2025

A Historic Step Forward: IDefine Approves $300,000 for Natural History Study with Boston Children’s Hospital

IDefine News  -

IDefine forms collaboration with Radboud University, biotech company

IDefine News  - February 21, 2025

IDefine awards project to develop advanced cell models of Kleefstra syndrome

IDefine News  -

Rare U: Education and Awareness for our Kleefstra Community

IDefine News  - February 15, 2025
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IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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