IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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About IDefine
Our Story
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About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worlwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
Radboud
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BCH Visit Preparation
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Natural History Study
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2022 Conference
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Newsletter Archive
Store
About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worlwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
Radboud
Resources
Get Involved
BCH Visit Preparation
Research
Our Mission
Scientific Advisory Board
Natural History Study
Survey
Our Projects
News + Events
2022 Conference
2021 Conference
Blog
Organize a Meet Up
Launch a Fundraiser
Newsletter Archive
Store
Donate
Now
IDefine Blog
Categories
ALL
ALL
CSO Corner
IDefine News
Uncategorized
IDefine’s Margo Metzger Joins EveryLife Foundation for Rare Diseases
IDefine News
- August 20, 2023
Sleep study results expected at end of summer
IDefine News
- July 16, 2023
Meet Disease Concept Model Leader Kristen Connors
IDefine News
-
KS Speech Study Results Being Analyzed
IDefine News
- June 16, 2023
Meet IDefine’s new director of development
IDefine News
- May 19, 2023
Southern Roots Reunion Recap
Uncategorized
- April 23, 2023
Prof. Kleefstra recruited to new hospital
Uncategorized
- April 22, 2023
IDefine Europe helps connect Kleefstra Syndrome communities
IDefine News
- March 20, 2023
A day to highlight humanness, acknowledge progress
IDefine News
- February 22, 2023
KS census number a top priority in 2023
IDefine News
- January 18, 2023
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