IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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  • About Kleefstra Syndrome
    • What is Kleefstra Syndrome
    • Newly Diagnosed?
    • Testing and Diagnosis
    • Therapies and Early Interventions
    • Worlwide Map
  • Caregiver Community
    • Newly Diagnosed?
    • Boston Childrens Hospital
    • Radboud
    • Resources
    • Get Involved
    • BCH Visit Preparation
  • Research
    • Our Mission
    • Scientific Advisory Board
    • CZI Meta Feed
    • Natural History Study
    • Survey
    • Our Projects
  • News + Events
    • 2022 Conference
    • 2021 Conference
    • Blog
    • Organize a Meet Up
    • Launch a Fundraiser
    • Newsletter Archive
  • Store
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ALL
ALL CSO CornerIDefine News

A day to highlight humanness, acknowledge progress

IDefine News  - February 22, 2023

KS census number a top priority in 2023

IDefine News  - January 18, 2023

Florida students recognize KS awareness

IDefine News  - December 12, 2022

Restaurant group serves helping of generosity, raising money for IDefine

IDefine News  -

Brianna’s Brigade marches on

IDefine News  - November 16, 2022

IDefine invests in developing stem cell line models

IDefine News  - October 14, 2022

Conference provides insights for rare disease organizations

IDefine News  -

IDefine celebrates two-year anniversary, accomplishments

IDefine News  - September 16, 2022

42-year-old rabbi receives KS diagnosis, connects to community

IDefine News  - September 14, 2022

Coming up big for Kleefstra Syndrome Down Under

IDefine News  - August 15, 2022
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IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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