“By the Book” care arrives: International clinical guideline published for Kleefstra syndrome

IDefine News  - January 25, 2026

Family by Fate: The McDonald family turning barriers into bridges

IDefine News  - December 2, 2025

Raelynn’s Run unites community, raises $30,000 for Kleefstra syndrome research

IDefine News  - October 18, 2025

Family by Fate: The Finlaysons’ Journey with Kleefstra Syndrome

IDefine News  - August 23, 2025

Family by Fate: The Landstroms’ Kleefstra Syndrome Journey

IDefine News  - July 20, 2025

Tennessee Mom’s Five-Year Fight Leads to Historic Kleefstra Syndrome Coverage

IDefine News  - June 17, 2025

Building hope through science: Dr. Angels Almenar-Queralt and the power of neural organoids

IDefine News  - May 18, 2025

Hezekiah’s Journey: A Story of Love, Advocacy, and Strength

IDefine News  - April 27, 2025

The Parmann Family Becomes the 100th to visit BCH Kleefstra Clinic

IDefine News  -

Southern Roots: A BBQ Reunion sells out, raises record funds

IDefine News  -