I define my future.
I will change the world.

IDefine is committed to identifying life-changing treatments & cures for those with Kleefstra Syndrome and other Intellectual Disabilities, building community and resources for families.

To learn more about IDefine’s current efforts, please read this message from our founders.

IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.

I define my future.

I will change the world.

IDefine is committed to identifying life-changing treatments & cures for those with Kleefstra Syndrome and other Intellectual Disabilities, building community and resources for families.

To learn more about IDefine’s current efforts, please read this message from our founders.

IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.

Kleefstra Syndrome Awareness Day
September 17th, 2023
Putting Kleefstra Syndrome on the Map!

With your help, we can make a difference in the lives of families every where across the world with Kleefstra Syndrome. Your generosity helps support the Kleefstra Clinic, enables our ability to build community via our 2024 family conference, and drives research initiatives forward that we hope will provide a brighter future for our loved ones!

Our Blog

3d,Illustration,Of,Cerebral,Organoids
CSO Corner Volume 9: Making More Sophisticated Models
Hello fellow members of our KS family! In my last article, I talked about the basic concept of making models to better understand a rare disease like Kleefstra...

We would love to hear from you.

If you have any questions feel free to contact us. We will be sure to get back to you as soon as possible.