New Study on Kleefstra Syndrome Offers Hope for Better Care and Future Treatments

Uncategorized  - January 18, 2025

Information, inspiration gained from Family Conference

IDefine News  - July 28, 2024

Excitement builds for Family Conference!

IDefine News  - June 1, 2024

Early bird registration open for Family Conference, agenda available

IDefine News  - February 17, 2024

2024 Kleefstra Syndrome North American Family Conference Update

IDefine News  - January 14, 2024

CSO Corner Volume 7: On Finding Out (and a Call to Action!)

CSO Corner  - December 19, 2023

A Night at the Races is a winner for IDefine

IDefine News  -

IDefine’s Margo Metzger Joins EveryLife Foundation for Rare Diseases

IDefine News  - August 20, 2023

Meet IDefine’s new director of development

IDefine News  - May 19, 2023

Southern Roots Reunion Recap

Uncategorized  - April 23, 2023