From Clinic Visit to Crucial Research: Our Experience at the Kleefstra Clinic and Natural History Study

IDefine News  - October 19, 2025

The Parmann Family Becomes the 100th to visit BCH Kleefstra Clinic

IDefine News  - April 27, 2025

Family by Fate: Meet the Ng-Gerritsens

IDefine News  - February 9, 2025

Information, inspiration gained from Family Conference

IDefine News  - July 28, 2024

CSO Corner Volume 4: Creating a Disease Concept Model

CSO Corner  - June 16, 2023

Connections, information gained from Family Conference

IDefine News  - July 16, 2022