IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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About Kleefstra Syndrome
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About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worldwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
Radboud
Resources
Get Involved
BCH Visit Preparation
Research
Our Mission
Scientific Advisory Board
Natural History Study
Survey
Our Projects
News + Events
2022 Conference
2021 Conference
Blog
Organize a Meet Up
Launch a Fundraiser
Newsletter Archive
Store
Donate
Now
IDefine Blog
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CSO Corner
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CSO Corner Volume 4: Creating a Disease Concept Model
CSO Corner
- June 16, 2023
Connections, information gained from Family Conference
IDefine News
- July 16, 2022