Tennessee Mom’s Five-Year Fight Leads to Historic Kleefstra Syndrome Coverage

IDefine News  - June 17, 2025

Building hope through science: Dr. Angels Almenar-Queralt and the power of neural organoids

IDefine News  - May 18, 2025

Hezekiah’s Journey: A Story of Love, Advocacy, and Strength

IDefine News  - April 27, 2025

The Parmann Family Becomes the 100th to visit BCH Kleefstra Clinic

IDefine News  -

Southern Roots: A BBQ Reunion sells out, raises record funds

IDefine News  -

A Historic Step Forward: IDefine Approves $300,000 for Natural History Study with Boston Children’s Hospital

IDefine News  - March 22, 2025

Family by Fate: Meet the Ng-Gerritsens

IDefine News  - February 9, 2025

New Study on Kleefstra Syndrome Offers Hope for Better Care and Future Treatments

Uncategorized  - January 18, 2025

IDefine joins Rare Epilepsy Network

IDefine News  - November 23, 2024

Margo Knight Metzger joins IDefine board

IDefine News  - July 28, 2024