IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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  • About Kleefstra Syndrome
    • What is Kleefstra Syndrome
    • Newly Diagnosed?
    • Testing and Diagnosis
    • Therapies and Early Interventions
    • Worldwide Map
  • Caregiver Community
    • Newly Diagnosed?
    • Boston Childrens Hospital
    • BCH Visit Preparation
    • Radboud
    • Resources
  • Research
    • Our Mission
    • Research Funding
    • Funding Opportunities
    • Get Involved
    • For Researchers
    • Scientific Advisory Board
    • Natural History Study
  • News + Events
    • Blog
      • Newsletter Archive
    • 2022 Conference
    • 2021 Conference
    • Organize a Meet Up
    • Launch a Fundraiser
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ALL CSO CornerIDefine NewsUncategorized

Conference provides insights for rare disease organizations

IDefine News  - October 14, 2022

IDefine celebrates two-year anniversary, accomplishments

IDefine News  - September 16, 2022

42-year-old rabbi receives KS diagnosis, connects to community

IDefine News  - September 14, 2022

Coming up big for Kleefstra Syndrome Down Under

IDefine News  - August 15, 2022

Connections, information gained from Family Conference

IDefine News  - July 16, 2022

Special attention given to KS siblings

IDefine News  - July 15, 2022

Update on IDefine Research Program

IDefine News  - June 17, 2022

IDefine attends Ultragenyx Rare Entrepreneur Bootcamp

IDefine News  - May 16, 2022

Registration deadline approaching for Family Conference

IDefine News  - April 15, 2022

It Takes a Village Returns

IDefine News  -
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IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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