IDefine
IDefine is a nonprofit organization dedicated to advancing research, building community, and driving progress that can lead to new treatments, and eventually a cure for Kleefstra syndrome.
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    • Scientific Advisory Board (SAB)
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    • Ways to Give: Crypto, Stock & DAF
    • Fundraising Events
    • Host an Event
  • News + Events
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    • 2026 North American Kleefstra Syndrome Conference
    • IDefine Blog
    • Scientific Summit 2026
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ALL CSO CornerIDefine NewsUncategorized

Rare U: Education and Awareness for our Kleefstra Community

IDefine News  - February 15, 2025
IDefine – The Kleefstra Syndrome Foundation

We are glad you found us.

Together, we are turning barriers into bridges and building a brighter future for everyone affected by Kleefstra syndrome.

Talk to a parent, questions, volunteeringunlock@idefine.org
Kleefstra Syndrome ClinicKleefstraSyndromeClinic@childrens.harvard.edu
617-355-3645
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Diagnosis codeICD-10-CM Q87.86

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